General References:

American Lung Association
American Thoracic Society
Cancer Hope Network
Clinical Trials Information
Corporate Angel Network
DNA From the Beginning
Genetics Home Reference: Your Guide to Understanding Genetic Conditions
Miracle House
National Home Oxygen Patients Association
National Institutes of Health Office of Rare Diseases
National Kidney Foundation
National Organization for Rare Disorders
Partnership for Prescription Assistance
Portable Oxygen: A User’s Perspective
Travel Breathe Repeat
Flying with a portable oxygen concentrator

National LAM Websites:

LAM Foundation (US)
LAM Health Project

National TSC Websites:

Herscot Center for Children and Adults with TSC at Massachusetts General Hospital
Living with TSC
Tuberous Sclerosis Alliance
Tuberous Sclerosis Alliance: State and National Resources

International LAM and TSC Websites:

AELAM: Asociación Española de Linfangioleiomiomatosis (Spain)
Associação LAM Do Brasil (Brazil)
Association FLAM – France Lymphangioléiomyomatose (France)
Associazione Italiana Linfangioleiomiomatosi (Italy)
Australasian Tuberous Sclerosis Society
Israel Association Of Rare Diseases (Eitan)
Japan LAM
LAM Action (UK)
LAM Australasia Research Alliance (LARA)
LAM Canada
LAM Italia
LAM Selbsthilfe (Germany)
New Zealand LAM Charitable Trust
Swedish Tuberous Sclerosis Association
The Tuberous Sclerosis Association (UK)
Tuberous Sclerosis Canada Sclerose Tubereuse